Other H&O Websites:
H&O Related Websites:
FOR MORE INFORMATION ON LYME DISEASE:
These are 3 organizations I feel are significant in the battle for awareness of the Lyme- and Tick-Related Disease epidemic:
LymePA.org has a particularly good and very informative brochure for anyone who has questions about tick-related diseases and proper treatment of them.
TurnTheCorner.org has a very specific and important agenda-- educating doctors about the dangers of Tick-Related Disease (a surprising number of them are misinformed) and teaching them about the proper diagnosis, testing and treatment of the various diseases.
To all of you who have the disease(s) or know someone who has it/them: Happy endings and don't despair!
Lyme Disease Association of Southeastern Pennsylvania, Inc. (LDASEPA)
The LDASEPA, an affiliate of the national Lyme Disease Association, is an all-volunteer non-profit organization aimed at improving the lives of people suffering from Lyme and other tick-borne diseases and preventing new cases through education, support, public information, research and partnership with organizations with common goals.
Our public education meetings are open to the public, where invited speakers and/or LDASEPA members can present scientific and/or medical information to the general public, educational institutions, public service organizations and private industry. Our support group meetings are open to the public, where people interested in Lyme and tick-borne disease can share their experiences with others and where the free exchange of ideas and scientific and/or medical information can take place in an open forum. We have run local surveys of the incidence of Lyme disease to inform the public and health authorities of the growing epidemic of Lyme disease in our region and we have distributed, by request, well over 100,000 copies of our Basics booklet to patients, physicians and support groups across the entire country.
Staci and Rich Grodin founded Turn the Corner Foundation in February of 2002 to help increase awareness, education and innovative treatments for Lyme disease. Staci has suffered from Lyme disease since 1994. Through her battle with Lyme disease over the past eleven years, she has seen first hand the critical need for Lyme disease research and education. All administrative costs of the Foundation have been covered, therefore 100% of the over $1 million raised to date, has been allocated to accomplish their mission.
Turn the Corner has been very active in training physicians worldwide as evidenced by their world wide physician-training program through ILADS, as well as the establishment of the Turn the Corner Foundation Education Fund at Columbia University. In addition to other major projects, they have also funded a significant project by the world-renowned Dr. Burrascano to create a next generation Lyme disease database to be distributed to physicians worldwide.
For more information about Turn the Corner and Lyme disease, please visit www.turnthecorner.org or contact Staci Grodin at 212-580-6262.
The Lyme Disease Association (LDA) is an all-volunteer, national non-profit with chapters and affiliates across the country that share the same goals: Lyme disease education, prevention, research funding, and patient support. The LDA and affiliates have raised $5 million toward those goals. 96% of donations to LDA go directly to programs which include providing free materials, free doctor referrals, and an annual fully accredited medical conference for physicians. LDA’s funded research projects have been published in medical peer review including The Proceedings of the National Academy of Science. LDA and Time for Lyme, its Connecticut affiliate, have raised 75% of the monies necessary to open an endowed research center at Columbia University, the first of its kind in the world. LDA has a fund, LymeAid 4 Kids, supported by author Amy Tan, for children with no insurance coverage.