FOR MORE INFORMATION ON LYME DISEASE:
These are 3 organizations I feel are significant
in the battle for awareness of the Lyme-
and Tick-Related Disease epidemic:
LymePA.org has
a particularly good and very informative
brochure for anyone who has questions about
tick-related diseases and proper treatment
of them.
The Lyme Disease Association (LDA) is
the parent organization of LymePA.org.
For further information on other local
Lyme organizations, be sure to visit their
website at LymeDiseaseAssociation.org.
TurnTheCorner.org has
a very specific and important agenda--
educating doctors about the dangers of
Tick-Related Disease (a surprising number
of them are misinformed) and teaching them
about the proper diagnosis, testing and
treatment of the various diseases.
To all of you who have the disease(s)
or know someone who has it/them: Happy
endings and don't despair!
Daryl Hall
LymePA.org
Lyme Disease Association of Southeastern
Pennsylvania, Inc. (LDASEPA)
The LDASEPA, an affiliate of the national
Lyme Disease Association, is an all-volunteer
non-profit organization aimed at improving
the lives of people suffering from Lyme
and other tick-borne diseases and preventing
new cases through education, support, public
information, research and partnership with
organizations with common goals.
Our public education meetings are open
to the public, where invited speakers and/or
LDASEPA members can present scientific
and/or medical information to the general
public, educational institutions, public
service organizations and private industry.
Our support group meetings are open to
the public, where people interested in
Lyme and tick-borne disease can share their
experiences with others and where the free
exchange of ideas and scientific and/or
medical information can take place in an
open forum. We have run local surveys of
the incidence of Lyme disease to inform
the public and health authorities of the
growing epidemic of Lyme disease in our
region and we have distributed, by request,
well over 100,000 copies of our Basics
booklet to patients, physicians and support
groups across the entire country.
TurnTheCorner.org
Staci and Rich Grodin founded Turn the
Corner Foundation in February of 2002 to
help increase awareness, education and
innovative treatments for Lyme disease.
Staci has suffered from Lyme disease since
1994. Through her battle with Lyme disease
over the past eleven years, she has seen
first hand the critical need for Lyme disease
research and education. All administrative
costs of the Foundation have been covered,
therefore 100% of the over $1 million raised
to date, has been allocated to accomplish
their mission.
Turn the Corner has been very active in
training physicians worldwide as evidenced
by their world wide physician-training
program through ILADS, as well as the establishment
of the Turn the Corner Foundation Education
Fund at Columbia University. In addition
to other major projects, they have also
funded a significant project by the world-renowned
Dr. Burrascano to create a next generation
Lyme disease database to be distributed
to physicians worldwide.
For more information about Turn the Corner
and Lyme disease, please visit www.turnthecorner.org or
contact Staci Grodin at 212-580-6262.
LymeDiseaseAssociation.org
The Lyme Disease Association (LDA) is
an all-volunteer, national non-profit
with chapters and affiliates across the
country that share the same goals: Lyme
disease education, prevention, research
funding, and patient support. The LDA
and affiliates have raised $5 million
toward those goals. 96% of donations
to LDA go directly to programs which
include providing free materials, free
doctor referrals, and an annual fully
accredited medical conference for physicians.
LDA’s funded research projects
have been published in medical peer review
including The Proceedings of the National
Academy of Science. LDA and Time for
Lyme, its Connecticut affiliate, have
raised 75% of the monies necessary to
open an endowed research center at Columbia
University, the first of its kind in
the world. LDA has a fund, LymeAid 4
Kids, supported by author Amy Tan, for
children with no insurance coverage.
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